We've been home almost two weeks now, past the first round of doctor appointments, past the jet-lag, and are starting to figure out what's gonna work for us going forward and what isn't. We still have quite a while until this becomes the new "normal" for us but so it is.
The kids are doing well, here's the rundown youngest to oldest:
Mae
Mae is generally a happy little girl until she gets tires. She seems perfectly happy with Heather or me. She sleeps through the night and naps well although it's sometimes difficult to get her to sleep to begin with. Heather's better at that than I am. Mae also cries out frequently when she's repositioning in bed, I don't think she actually wakes up b/c she calms down quickly but I think it does wake Heather up. Otherwise, she's eating well, she plays wells, and is doing great.
Medically, we have an appointment with Shriners in February for an initial evaluation. The Pediatrician ordered some blood tests but nobody's been able to draw her blood. At the latest attempt, the tech felt her arms and didn't even try to stick her.
Scott
Scott gained 10 pounds the minute we got back from China. Not sure how but he did. He eats non-stop and is insatiable. Because he eats so much he also does something else so much, his diapers are barely containing it and sometimes fail to do that. He gets frequent impromptu baths... He's very active, plays well with Jacob and Mae although sometimes he and Jacob squabble which I suppose is normal. We've managed to get him sleeping in his own bed again, now we just need him to put himself to sleep...
Matter of fact, as I was finishing this very paragraph, the following happened:
- Scott fell off a small chair and busted his upper lip (blood everywhere).
- While tending to his bloody lip, I notice he stinks a bit. First things first, let's deal with the blood.
- Once I get the lip and the crying under control I sit with him to calm him down (it's about nap time, he passes out immediately). I notice the stinkyness again.
- I take him to the changing table and find that he's blown out of his diaper... I get him cleaned up, stripped down, in a new diaper.
- I lay him in the bed and he falls asleep on his own.
And there you have it, that's how we roll.
Jacob
Jacob is very active. He seems to be attaching well but gets very nervous when either one of us leaves (unless he's leaving too). This morning Heather took Lora and Joshua to school. As they were getting ready, Jacob kept getting his shoes and trying to get one of us to put them on... He's a typical 2-year-old in many other ways, testing boundaries, temper tantrums, hitting, biting, etc... We're working through all that.
Medically, he has a heart echo scheduled next week and then they'll do a heart catheter a week or so after that. Those two tests will help the surgeons determine a path forward. The Pediatrician also ordered blood work on him. 2 labs and 4 techs, nobody has successfully stuck him yet. Heather did get a poo sample submitted, lets hope they don't lose it (check the post from February 6, 2013 for the history on this comment).
Joshua
Joshua is Joshua. He's nosy, inquisitive, a copy-cat, and all the other things that a 4-year-old little brother is. He's in pre-school and enjoys his, he's a good learner. He tries hard to follow rules but frequently acts without thinking, again typical 4yo I think. He still has very tender emotions, i presume he'll grow out of that. Anyways, he's been ours over two years now and we couldn't imagine life without him.
Lora
Lora is 5, very close to 6. She's bossy, pushy, also nosy, and all the things a big sister is (I would know). She's a very creative little girl and also a great learner. Hyperactive, and as long as she gets her naps she's a delight. She also mispronounces a lot of words which is super funny (Hence the title of this post. Lora says suppression instead of explosion. Any time the boys blow out their diaper Lora declares it a suplosion.)